Rare Disease Day

February 29 2020

Rare Disease Day

Fostering Awareness for Rare Diseases is Vital

1 in 20 people live with one.

No cure for most rare diseases exist.

Many remain undiagnosed.

Access to timely interventions and therapies is restricted.

This special day is for the public to become enlightened.

This special day is to prod researchers to investigate them.

This special day is to address needs of patients and their families.

Rose-Mary Boustany MD on behalf of the AUBMC Special Kids Clinic and OpenMinds, Lebanon.

  • Date: Saturday, February 29, 2020

MEDICAL PACKAGES

We are in the throes of transformation and conflicts yet to be resolved.  These will affect all our lives in Lebanon and the region, particularly services to families in need.  The prevalence of special needs is 1/10 children in ordinary times.  During times of conflict and unrest, this figure becomes 1 in 5 children!  The new number of families with one or more children with special needs assisted by OpenMinds packages in 2019 is 75. To date, this number is now 415, with many waiting in the wings.

In 2019:

EMPLOYMENT COLLABORATION

The I Can Work program developed by Step Together Association in collaboration with OpenMinds is designed to integrate students with learning difficulties in the workplace within the community, under the supervision of a coach and a coordinator. In its third year running, the program has managed to have:

30 students between the ages of 16 and 22 in workplaces comprised of small and medium enterprises such as:

  • Supermarkets
  • Barbershops
  • Restaurants
  • Pharmacies
  • Libraries
  • Nurseries

Pages

Advocacy

OpenMinds aims to spread awareness and acceptance of special needs throughout the community via innovative initiatives.  The aim of the various...

OpenMinds strives to ensure that those with special needs receive their full rights with regards to health, education, and social benefits. We...

At OpenMinds we believe that one of the greatest challenges adolescents and young adults with special needs face is becoming financially...

At OpenMinds we strongly believe that the key to effective and genuine integration of individuals with special needs into society should ideally...